clare turner

My feedback

  1. 943 votes
    Vote
    Sign in
    Check!
    (thinking…)
    Reset
    or sign in with
    • facebook
    • google
      Password icon
      I agree to the terms of service
      Signed in as (Sign out)
      You have left! (?) (thinking…)
      clare turner supported this idea  · 
      clare turner commented  · 

      Misdiagnosed as ME/CFS by NHS for 10 years Private tests positive for Lyme Borreliosis plus 3 co-infections, causing even more damage. A mix of antibiotics was getting me better but I can no longer afford them. Now I am getting worse fast. Soon I won't be able to cope independantly. Dreading a future of total disability, total dependance for several years or suicide while I'm still able.

    • 113 votes
      Vote
      Sign in
      Check!
      (thinking…)
      Reset
      or sign in with
      • facebook
      • google
        Password icon
        I agree to the terms of service
        Signed in as (Sign out)
        You have left! (?) (thinking…)
        clare turner commented  · 

        Now into my 5th year of antibiotics & other medications, plus many supplements, all of which I have to pay for out a State Pension & Disability Living Allowance... my only income.
        I'm beginning to have small improvements, but still can only do 5% of what I actually want to do. If I'd had a correct diagnosis in 1996 when Lyme disease struck me down, effective treatments & tests, I'd have continued working to this day. I loved my job as a studio potter, & was earning a reasonable income. By now I'd be quite comfortably off. Instead I remain a burden on the State, requiring Housing Benefit, Council Tax paid for me, and several symptom relieving medications.

        clare turner commented  · 

        Before Lyme I was full of energy, successful in my work, & had a full social life. For 16 years my life has been ruined by Lyme disease. Now in my third year of antibiotics. Recently had some small improvements in symptoms; but I'm still largely housebound. If GPs were properly trained to recognise the symptoms & allowed to treat effectively, it would bring an end to the misery caused by this horrible disease. It's not cost effective to have able citizens off sick & in receipt of benefits for the rest of their lives instead of continuing contributions towards the econonmy & society. It seems we have lunatics in charge of health policy. Or is it some dreadful experiment on humanity? What's really going on?

        clare turner commented  · 

        In Poland & Hungary, Warsaw Pact countries, if a patient presents with typical Lyme symptoms the doctors don't wait for test results, they treat immediately with antibiotics. Why can't this happen here? Why do the government advisors tell such lies, saying it's rare when it's known there are 1,000s of new cases every year? What do they have to gain/loose?

        clare turner supported this idea  · 
        clare turner commented  · 

        GP ignorance of Lyme & co-infections is a scandal. How long before it's realised by our rulers that leaving so many to lifelong disability is far more expensive for the country than early treatment.

      • 10 votes
        Vote
        Sign in
        Check!
        (thinking…)
        Reset
        or sign in with
        • facebook
        • google
          Password icon
          I agree to the terms of service
          Signed in as (Sign out)
          You have left! (?) (thinking…)
          clare turner shared this idea  · 
        • 1,595 votes
          Vote
          Sign in
          Check!
          (thinking…)
          Reset
          or sign in with
          • facebook
          • google
            Password icon
            I agree to the terms of service
            Signed in as (Sign out)
            You have left! (?) (thinking…)
            clare turner commented  · 

            If government took the trouble to find out about total cost of non-polluting, renewable forms of energy & energy saving techniques, as opposed to the real cost of nuclear, those with any conscience would not support nuclear new build.

          Feedback and Knowledge Base