Misdiagnosed as ME/CFS by NHS for 10 years Private tests positive for Lyme Borreliosis plus 3 co-infections, causing even more damage. A mix of antibiotics was getting me better but I can no longer afford them. Now I am getting worse fast. Soon I won't be able to cope independantly. Dreading a future of total disability, total dependance for several years or suicide while I'm still able.
Now into my 5th year of antibiotics & other medications, plus many supplements, all of which I have to pay for out a State Pension & Disability Living Allowance... my only income.
I'm beginning to have small improvements, but still can only do 5% of what I actually want to do. If I'd had a correct diagnosis in 1996 when Lyme disease struck me down, effective treatments & tests, I'd have continued working to this day. I loved my job as a studio potter, & was earning a reasonable income. By now I'd be quite comfortably off. Instead I remain a burden on the State, requiring Housing Benefit, Council Tax paid for me, and several symptom relieving medications.
Before Lyme I was full of energy, successful in my work, & had a full social life. For 16 years my life has been ruined by Lyme disease. Now in my third year of antibiotics. Recently had some small improvements in symptoms; but I'm still largely housebound. If GPs were properly trained to recognise the symptoms & allowed to treat effectively, it would bring an end to the misery caused by this horrible disease. It's not cost effective to have able citizens off sick & in receipt of benefits for the rest of their lives instead of continuing contributions towards the econonmy & society. It seems we have lunatics in charge of health policy. Or is it some dreadful experiment on humanity? What's really going on?
In Poland & Hungary, Warsaw Pact countries, if a patient presents with typical Lyme symptoms the doctors don't wait for test results, they treat immediately with antibiotics. Why can't this happen here? Why do the government advisors tell such lies, saying it's rare when it's known there are 1,000s of new cases every year? What do they have to gain/loose?
GP ignorance of Lyme & co-infections is a scandal. How long before it's realised by our rulers that leaving so many to lifelong disability is far more expensive for the country than early treatment.
10 votesclare turner shared this idea ·
If government took the trouble to find out about total cost of non-polluting, renewable forms of energy & energy saving techniques, as opposed to the real cost of nuclear, those with any conscience would not support nuclear new build.