I suggest a campaign about ...

Funding for bio-medical research into M.E. and not the psychiatric lobby or big pharma.

The definition of M.E. as a neurological illness as classified by the World Health Organisation is widely acknowledged. However, why is the funding in the UK given to the psychiatric lobby and NOT into clinical or bio-medical research? Is it because this area is monopolised by those with particular vested ?interests

1,199 votes
Vote
Sign in
Check!
(thinking…)
Reset
or sign in with
  • facebook
  • google
    Password icon
    I agree to the terms of service
    Signed in as (Sign out)
    You have left! (?) (thinking…)
    Nicola KellNicola Kell shared this idea  ·   ·  Flag idea as inappropriate…  ·  Admin →

    272 comments

    Sign in
    Check!
    (thinking…)
    Reset
    or sign in with
    • facebook
    • google
      Password icon
      I agree to the terms of service
      Signed in as (Sign out)
      Submitting...
      • Sarah GriffithsSarah Griffiths commented  ·   ·  Flag as inappropriate

        My illness began in 1994 and is, sadly, still with me. I have been paralysed by unimaginable pain, unable to move or speak, tolerate light or sound. Having to be fed, washed, dressed, help with going to the loo (which is beyond humiliating!)and have my teeth cleaned for me. Before this I was very busy running our pub and played sport regularly so, as you can imagine, M.E. has devastated my life and that of those around me because they have had to care for me. Not only have I had to come to terms and deal with this hideous disease but also with the ignorance of others, especially the medical profession.They have treated me with utter contempt and even when I have other medical problems they barely give me the time of day and do not investigate further. This is because of the psychiatric lobby their vile lies about M.E. (to keep the millions that they get!!!) when there is not one research paper that proves we have mental illness, there are however hundreds detailing the bio-medical reason for this illness. Oh by the way, if M.E. is not that serious then why are their documents (revealing what has caused it) hidden within the official secrets act not to be released for 75 years, puzzling that, isn't it ?!

      • VikkiVikki commented  ·   ·  Flag as inappropriate

        Funding for bio medical research into M.E is desperately needed

      • MaryMary commented  ·   ·  Flag as inappropriate

        So many ill people and in pain need your help, please vote max votes of 3

      • theonlyfluffyonetheonlyfluffyone commented  ·   ·  Flag as inappropriate

        BioMedical research for ME........We, the sufferers and our families are not going to stop campaigning...............
        ME is a neurological illness an we need biomedical research now

      • CarmelCarmel commented  ·   ·  Flag as inappropriate

        Biomedical research is so much needed, as up to date the psychiatric department have been 'guessing' how to treat us with dangerous outcomes! We need real research and treatment into ME

      • Barbara KellBarbara Kell commented  ·   ·  Flag as inappropriate

        I think it's because most of us refuse the C.B.T. and G.E.T. treatment Michael, for very good reasons. IT DOES NOT WORK. At best it does nothing but at worst it makes you more ill.
        It is money down the drain, money that should be spent on the bio-medical research we are asking for.

      • Michael EvisonMichael Evison commented  ·   ·  Flag as inappropriate

        There are 250.000 M.E sufferers in England and from my knowledge there are only two beds in a psychiatric ward in Leeds for the whole of the north of England. Is this because it is vastly underfunded or that no one wants C.B.T and G.E.T because they know it will only make them worse.

      • Michael EvisonMichael Evison commented  ·   ·  Flag as inappropriate

        What is the point of pushing sick people through 'talking and exercise' therapies when their basic needs like pain control are not being met? it is money down the drain because they do not have the capacity to do either whilst they are in so much pain.

      • Margaret LaverickMargaret Laverick commented  ·   ·  Flag as inappropriate

        There are individuals out there making lots of money from ME. Listen to patients, clinical and bio-medical research is the only way forward.

      • Margaret LaverickMargaret Laverick commented  ·   ·  Flag as inappropriate

        Research and treatment for ME patients would SAVE government money, spend wisely, ditch the psychological research.

      • Michael EvisonMichael Evison commented  ·   ·  Flag as inappropriate

        I think NHS depts who prescribe psychiatric treatment for ME patients, resulting in the patient either having no noticeable benefits or getting worse should be fined for wasting Govt funds

      • Margaret LaverickMargaret Laverick commented  ·   ·  Flag as inappropriate

        Bio medical research is desperately needed to get a diagnostic test and treatment to allow ME patients to get their lives back. Action Now!

      • Michael EvisonMichael Evison commented  ·   ·  Flag as inappropriate

        If our media is so even handed, they would balance the bizarre claims of Dr Wessely and the psychiatric lobby with the more realistic bio-medical community who are actually producing more in the way of beneficial help to the ME community although they are not receiving an equivalent proportion of the funding.

      • Gillian BroughtonGillian Broughton commented  ·   ·  Flag as inappropriate

        We want to be part of Camerons Big society , to have an education , work and contribute, socialise in order for this to happen we need Biomedical research into this debilitating Neurological , immunoligical condition .
        The Millions of tax payers money have lined the Psyciatrists pockets for far too long , Enough is Enough we are being denied health care people are dying from this illness , Act Now !!

      Feedback and Knowledge Base